Epidermolysis Bullosa is a rare genetic skin condition which occurs in less than 20 births per million. EB suffers have extremely fragile skin which results in severe blistering akin to third degree burns from only the slightest friction. It is commonly referred to as "The worst disease you've never heard of".
There is currently no known cure.
A family's faith is tested when they are confronted with the disease in their own children.
The Worst Disease You've Never Heard Of
Director: Paul Nevison
Producer: Caroline Bamford
DOP: Richard Cause
2nd Unit Camera: Neal Johnson, Billy Pasco
Production Assistant: Catrina Kong
Editor: Paul Nevison
Title Design: Nathaniel Redekop
Sound Recordist: Josiah New
Composer: Harrison Wood, Josiah New
Audio Mix: Josiah New
Colourist: Paul Nevison